tag:blogger.com,1999:blog-3852422397272068136.post7034816571547818186..comments2023-12-26T17:10:25.915-06:00Comments on Muddling through Mayhem: *sigh* It's NOT overmarythemomhttp://www.blogger.com/profile/08205319256573120866noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3852422397272068136.post-21782204934031862492011-05-09T11:52:46.281-05:002011-05-09T11:52:46.281-05:00STS - Brain Gym, not long. We've tried it a f...STS - Brain Gym, not long. We've tried it a few times in therapy, mostly to "wake her up" and get her contributing to therapy when she was stuck in Puddle mode. The therapist loaned me her book to see if it helped Kitty at school when she was stuck. Honestly it was like trying to apply a bandaid after the dam had burst.<br /><br />Now that she's a little more stable, I've been letting her move through the schedule on her own - which means we haven't done Brain Gym in a week. To answer your question about who decides what exercises to do - me. Sort of. Mostly I've been just repeating exactly what we've learned in therapy until I get a chance to finish the book and can make my own decisions... but I put the book down 2 weeks ago to move to another that I have higher hopes from, The Explosive Child (I'll be reviewing this one here soon).<br /><br />Marymarythemomhttps://www.blogger.com/profile/08205319256573120866noreply@blogger.comtag:blogger.com,1999:blog-3852422397272068136.post-27120595297188141522011-05-09T11:34:36.618-05:002011-05-09T11:34:36.618-05:00I grasp at straws for you.
Brain Gym. How long has...I grasp at straws for you.<br />Brain Gym. How long has she been doing it? Who decides what she does? My Mr P has had such severe regression from one simple body-movement pattern. It is ASTOUNDING how the "simple" movmenent triggers the body memories trigger the traumatic brain state.<br />I know Kitty needs brain-work, corpus collosum, etc. But it may be that she is moving too fast, even at 10 minutes twice a day.<br />You can ask on the NeuroNet list for opinions of others who might have BTDT; some have experience w/ Brain Gym.<br />...<br />I am so sorry it has all exploded.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3852422397272068136.post-74815437496529454482011-05-07T22:40:35.957-05:002011-05-07T22:40:35.957-05:00Not much to say other than great team work! We'...Not much to say other than great team work! We're praying!Tara - SanitySrchrhttps://www.blogger.com/profile/11389093745334636867noreply@blogger.comtag:blogger.com,1999:blog-3852422397272068136.post-6002441546264543862011-05-07T10:33:07.359-05:002011-05-07T10:33:07.359-05:00Thanks CherubMamma!
Thanks for retyping your comm...Thanks CherubMamma!<br /><br />Thanks for retyping your comment RADMom, it really helped. <br /><br />I really like your idea of going over her successes every night. I tend to avoid this because I worry that my kids will assume that because she had one "successful" day that she should get all privileges right then. All those years of "blank slate" training have given my kids an entitlement philosophy (schools and treatment centers are notorious for training kids that "what happened yesterday is in the past and you can start all over again today"). I get the school's reasoning - they don't want the kids discouraged and to give up, but it is short term thinking. I need my kids to understand that the real world doesn't start all over again the next day. I probably go overboard in that respect though and don't celebrate their successes often enough.<br /><br />I definitely need to lighten up and get more encouraging. Especially right now. <br /><br />One thing we've done is basically like child proofing - removing even the option of things they're not capable of at this time (if ever)- just remove it so we're not having to constantly say no or worry that they're getting into something that can hurt them. Unfortunately sometimes there are times when they can handle things and times when they can't. Plus, other members of the family CAN handle certain things so it's not fair to completely remove it. That's when things get more complicated.<br /><br />We're lucky that our kids don't seem to sabotage the successes - well, actually sometimes Bear does, but that's because he doesn't feel safe so he sabotages so that we will put back whatever restriction he needs to feel safe.<br /><br />I love reading your blog too. Sometimes I end up saving it so I have time to really absorb and respond.<br /><br />Thanks, <br />Marymarythemomhttps://www.blogger.com/profile/08205319256573120866noreply@blogger.comtag:blogger.com,1999:blog-3852422397272068136.post-69552045988554093902011-05-07T07:06:37.036-05:002011-05-07T07:06:37.036-05:00I hate blogger sometimes. I wrote a long comment a...I hate blogger sometimes. I wrote a long comment and it deleted it! Hopefully I will be able to put my thoughts into words again. But I just wanted to say how sorry I am that you and your family is going through this hard time with Kitty. I feel for Kitty and her pain and fear. I wish that I could transport whatever reserves I have right now to you during this hard time. I'm sure our hill will turn into a valley in the near future as that is always how it works but right now, you need all the support you can get and hopefully you are getting what you need.<br />I do agree there are a lot of parallels between Kitty and Penelope, even though right now they are at different places in their battle for emotional health and stability. I relate to your blog more so than any others I read and I just want you to know I learn so much and it's almost more theaurapudic then therapy for me. So thank you. You are doing a wonderful job, even though if you are anything like me, you cringe at that statement and think "but what am I doing wrong, what can I do differently, how can I make things change for the better?" And you are. The reason Kitty goes to you when she is a puddle is because you are her rock. She rages at you for the same reason. And you know that and you know what it means. <br />Penelope CURRENTLY is able to regulate herself more effectively but has the exact same "complaints" and comebacks that you have said. The one that sticks in my mind is her white/black thinking. Her rants about you'll never let her talk to her friends, or get to play on the computer again, etc. Penelope does that too! I'll tell you what has helped with Penelope that her therapist taught me, is during the delivery of the consequence "Because you showed me that you are not capable of finishing your chores completely without being tempted by the computer, I'm going to help you by taking the computer out of the equation." Is to also talk about how she can show you when she is ready to use the computer again. You may have it set that the entire day is out regardless but she has to work towards it again. The reason this has worked for Penelope (besides her owning her behavior) is that when she gets all "now or never" she has confessed to me that the never part is because deep down, (or maybe during that day, week or month) she feels she isn't capable of getting any better/ more stable/healthier than she is so that means she will never get to have the things that has to be earned. The most recent time she got that down on herself, her therapist had her and I discussing 3 successes that occurred that day every night before bed. It was probably helping me not be on her all the time too - which I know I was - I couldn't help it! Penelope was to come up with the successes. It was REALLY hard in the beginning. She was, what seemed like, purposefully not having any successes. So we started super small. "You brushed your teeth today." It did seem to help her out of her hole. But it was inch by inch. <br />Anyway, you are in my thougths and prayers! Stay strong and take care of yourself!RADMomINohiohttps://www.blogger.com/profile/16479673428163793816noreply@blogger.comtag:blogger.com,1999:blog-3852422397272068136.post-39248096464921362912011-05-05T19:54:49.901-05:002011-05-05T19:54:49.901-05:00Wow! You have got to be wiped out!! I'll keep ...Wow! You have got to be wiped out!! I'll keep on praying for you. I will pray that you get the support you need as you navigate through this difficult (oh hell who's kidding who?!...nearly impossible) time.Cherub Mammahttps://www.blogger.com/profile/07220602185537450139noreply@blogger.com