This blog is my place to vent and share resources with other parents of children of trauma. I try to be open and honest about my feelings in order to help others know they are not alone. Therapeutic parenting of adopted teenagers with RAD and other severe mental illnesses and issues (plus "neurotypical" teens) , is not easy, and there are time when I say what I feel... at the moment. We're all human!

Wednesday, April 20, 2011

Plea for help letters




Letter to Kitty's school, mental health providers, therapist, and the head of the special school that Bear attends:




Hi guys,

I feel it’s time to request an ARD (IEP meeting) to see if we can come up with a plan F, G… not sure what letter we’re up to… as this is just not working. Everybody has been amazing and super supportive, but Kitty is still so unstable. On top of the stress/anxiety that started all of this, now Kitty is adding to her own anxiety because she knows she’s getting further and further behind due to missing so many classes. She told {school psychiatrist}that she’s having suicidal thoughts, which we know about, but of course still have to address. This is worrying me because she’s starting to try to keep this from her mental health team and myself because she knows we might have to put her back in the psych hospital if she’s suicidal.

She’s starting yet another med tomorrow, but it’s only supposed to be a PRN (it can be addictive) so I don’t think we can expect it to make changes in the underlying issues. My biggest concern is that it feels like we’ve maxed what {the high school} is capable of providing Kitty and it’s just not enough. If you guys have more suggestions I’d love to hear them. I do think we should consider {the Special School for emotionally disturbed kids that Bear attends} or some other type of contained classroom for Kitty, at least for the rest of the school year.

I know TAKS {Texas standardized testing} is coming up next week. I need to get her schedule so we can try to get her there for the key times when at all possible.

Kitty has been complaining of bad stomach pain and threw up once last night and once this morning. No fever, but it could be stomach flu so I kept her home today (Bear said he hasn't slept in a week and that's why he's throwing up, but since that makes two, it's probably stomach flu). She’s resting now. We have not started the anti-anxiety med yet, as it is supposed to be PRN, and with her vomiting and not in school anyway it would be difficult to tell if it is working or causing side effects. Assuming she’s feeling better tomorrow she’ll start it then.

We’re working with her mental health provider to introduce a new skills trainer and case manager, who would like to meet with her at school since that’s where Kitty seems to need the most services right now. I realize this is made even more difficult by the fact that we’re having trouble getting Kitty to stay in school at all (she
appears to be only able to make it through a class a day). Plus {school psychiatrist} is trying to get Kitty’s testing done for the new FIE {school psych eval}. Next week because of TAKS we’ll try to have the meeting at home.

Thanks for everything you guys are doing to help Kitty through this!
Mary
Sent to the Nebraska casemanager who is trying to help us access post-adoptive services if she's able:





Hi Kari,

I'm not sure if there is someone else I'm supposed to be working with here, but here's what I found out this week.

Good news! I talked to the TX adoption specialist with CPS. They said they'd extend Bear's TX Medicaid to age 19 (instead of cutting him off when he turns 18) as long as they have a letter stating Nebraska is extending services with a subsidy to age 19 (which of course you are because that's how long it goes anyway). The 601 form that was filled out by ICAMA that qualified him for TX Medicaid when he was adopted, with the extension to age 19, must be sent where it was sent the first time in 2008 (when Bear was adopted). The ICAMA coordinator is {###}. If there is someone in Nebraska that I should speak directly to about this, please just give me the contact info and I will. Obviously if we're going to do this for Bear, then it only makes sense to do it for both kids at the same time.

Additional help urgently needed:
Kitty went to a psych hospital 3 weeks ago for domestic violence (she punched me in the face) and suicidal threats. She was there less than a week and then was released, but they put her on an anti-depressant which triggered self-harming behaviors (she's never really self-harmed before). They tried a second SSRI (anti-depressant) with similar results. Currently she's not taking anything new (she's on quite a few meds), although we have an anti-anxiety PRN med she'll start taking. So here's where I need help. The school is unable to keep her feeling safe, she still has suicidal thoughts, and despite cutting her back to half days, she's still coming home after attending only one class (so is getting even further behind in school. which adds to her anxiety). I don't think she needs to be in a psych hospital (we seem to be able to keep her safe so far), residential treatment seems a bit extreme at this point (although we're heading there), and her psychiatrist is suggesting partial day hospitalization (school and therapy all day, but she comes home every night). Unfortunately there is only one place in our area that offers this type of program and they don't take TX Medicaid. They take other kinds of insurance though. We had residential treatment written into our adoption subsidies for the kids (- if we can't get funding on our own, then Nebraska will pay for it). Partial day hospitalization is not residential treatment, but we're hoping that Nebraska can help us get it to prevent needing residential. This is absolutely desperate. Kitty is getting worse and I am on the edge trying to keep her stable. Can you help?


Mary

11 comments:

Last Mom said...

Hoping you get a good response. (((hugs))

Meg said...

Oh boy, Kitty sounds just like my son was in public school. We could not keep him stable there no matter what we tried. I hope you get the help you need. The school that your son attends sounds good. I wish we had something like that around here.

Melissa said...

Real name alert!

marythemom said...

Thanks Last Mom!

Meg - Depending on the size of the town you come from, you might. I can't tell you how big a secret the Special School is, and how hard it was to get Bear into it.

Thanks Melissa! Gotta start making sure I use "FIND" for stuff I cut and paste instead of just trying to edit.

Mary

triplehmoms said...

I am fairly new, Mary, to your family/blog and so I apologize if you have answered this or stated this before. What exactly is your goal with Kitty and school? Learning? Respite for you? Both?

Kate said...

Another real name alert in your last comment.

Have you considered pulling Kitty from school for TAKS? It sounds like she wouldn't be performing at her best, and if she's got any test-taking anxiety it might not be good for her emotionally right now. School personnel are generally told not to inform parents about the options to refuse the test for their kids, and it's harder in Texas than in some states, but it is a possibility.

marythemom said...

Triplehmoms - Not totally sure what you mean, but basically long-term we expect Kitty to graduate from high school, and maybe if she's at a good place emotionally she can try junior college. She has average to low average intelligence, but her learning disabilities,trouble with memory and processing, and mental illnesses make school difficult for her.

Short-term, academics are nowhere near as important to me as getting her stable, but to help her get services then I need to address the school from an academic angle. They won't help otherwise.

At the moment, though, I have to admit respite would be nice too. School will be out for the Summer soon enough and I'll have all 4 of them with no breaks.

Mary

marythemom said...

Kate (http://crgriffin.myopenid.com/) has left a new comment on your post "Plea for help letters":

Another real name alert in your last comment.

Have you considered pulling Kitty from school for TAKS? It sounds like she wouldn't be performing at her best, and if she's got any test-taking anxiety it might not be good for her emotionally right now. School personnel are generally told not to inform parents about the options to refuse the test for their kids, and it's harder in Texas than in some states, but it is a possibility.

______________________

Thanks Kate,

Not sure what happened to your comment, but probably deleted it somehow when I was fixing the name.

Thanks also for the suggestion on the tests. Basically it's going to be up to Kitty. If she can't handle the anxiety then she'll melt and come home (and if she melts on the first test day then I probably won't bring her for the second).

It'll tell us a lot if she actually does better - that her anxiety is more about social anxiety and being behind in school - because on test day the focus will be on supervision and quiet, semi-isolation - which she seems to have been needing. I figure I'll know more after that first day.

Mary

triplehmoms said...

You answered my question, Mary, just fine. I thought I remembered you saying that Kitty had low to low average IQ and other issues surrounding learning too. I was just asking what you expected her to "get" out of school.
I am not sure what is available in your area in terms of alternate schools. I know here (DFW), we have different alternatives, both public/charter or private. It just seems that SO much of Kitty's school issues surround the other kids, not necessarily the work she needs to complete. So, perhaps a different school setting is in order, even an online setting. This would just give her the option of 'self-paced" to complete her work and not have to deal with the kids. Yes, I realize that she will eventually have to deal with the public in the work force, etc. but she doesn't HAVE to do it now. I hope that makes sense.

Erika said...

I don't know if this is a possibility, but our child did incredibly better when we moved to homeschooling. I think that everything in school was so unpredictable (kids are wild) and she was always operating on hypervigilent high-alert mode. She was so much harder to manage at the end of a school day than a weekend, for example. Within about 4 months of homeschooling, she was chilled out. We play with other home-schooled kids (they are much nicer than the mean girls in school) once or twice a week.

marythemom said...

Erika - Homeschooling might be a little easier now that Kitty is attached (before, me trying to help her was damaging our relationship), but her learning disabilities still make things really difficult.

Mary