It is official, there are no more ADD meds for Bear to try. Every one he has tried (both on and off list stuff) has given him tics and other side effects (sometimes really scary ones!). According to his psychiatrist this does not mean he does not have ADD, it means we are unable to treat it with medication. Poor Bear.
5 comments:
I am so sorry, that is such a scary thing to hear, when there is nothing more you can do. Have you tried diet changes? I am so sorry.
Yea, diet would be next, but at Bear's age that is completely impossible. I'm curious -- what was the bad reaction to Provigil? (Asking 'cause I haven't heard of what they might be -- other than just not working well 'cause it doesn't give you a buzz.)
Or hey, (joke) just increase one of his sedating meds so he doesn't have the energy to notice distracting stimulus ... but boy, I've found that even when pretty sedated my mind can wander around doing its own thing, no focus ...
Been trying to catch up on the NeuralReorg list, they keep touting Biofeedback / Neuralfeedback. But yea, you need $ for that ... (joke 2) or find him a nice wealthy widow who will pay for it ...
Sorry, I need to get to bed, it is late!
Vyvanse - uncontrollable mouth and body movements, vomiting, dizziness and difficulty walking, agitated, and who knows what else - I didn't see him until about 8 hours after he had his first tiny dose and had been on Benadryl for that whole time. These were the reactions that I saw.
Provigil - no apparent results at all, positive or negative.
Intuniv - "vibrating," agitated and unable to sit still.
Stratera - same as Intuniv.
I never saw him on the other meds, but I'm assuming that he took these while in foster care and the results were recorded in the psychiatrist's notes.
Jessi - Struggling to Stand is correct. I have no ability to influence what Bear does or not eat. All I can enforce is meds.
Mary
It seems like his inattentiveness isn't caused by a lack of dopamine then. My next thought is nutritional supplimenets -- targeted amino acid therapy would be ideal, but far too expensive. Take a look at truehope.com, and if you like / are curious, I've got1/2 a bottle of their main stuff I'm happy to give you. (They are gluten-free, but as I ramped up my dosage I was getting more and more joint pain. I could tell they were working though). Note that I really hate their belief that you have to come off your psych meds or else you risk being over-medicated. For me, that sounds like BS. But that is also why I'm using Neurogistics 'cause they test, and then do follow-up tests. All for lots of $ and insurance won't cover. ...
Even getting fish oil and vit. D into him might help. They sell both in "gummies" now -- costco has reasonable prices.
Struggling to Stand - I'm willing to try anything. I'd love to try the truehope stuff. We did Omega 3s for over a year (until it got too expensive). I didn't see any noticeable results.
Both kids take a multivitamin. Kitty's is a prenatal because it's the only kind I've found that doesn't have citric acid (both she and I are allergic to acidic fruit).
Mary
Post a Comment